Welcome to my world of living with dementia of the Lewy Body type (LBD). I have opened the door, and you have chosen to come in. While I wished I had never had to open the door, I am thankful that you have chosen to come inside. You are important to me, and I need you in my life. Please never forget that you have come into my world.
It is important to remember not to argue with a person with dementia. If you have ever been inclined to think you might win the argument, I would suggest that you think again. This is one of many things that I really do not like about my world of dementia. While I have always been opinionated, I never liked to argue.
What you see in my world is real to me. My disease has progressed to the point that my filters are sometimes less than desirable. Sometimes, I feel humiliated because I cannot control my emotions; and, I feel frantic and there is nowhere that I can go to remove myself from that feeling. Sometimes, I even feel like I'm being disrespected.
Often, there are people who come into my world who do not want to be there. I am sorry that you might feel uncomfortable in my world; but, I still need you in my world. I need all the socialization that I can muster because it improves my overall sense of well-being. I long for the day when there will be a better understanding of what it is like to live with dementia. Deep within my soul, I want the lives of the person with dementia, their care partners, friends and others to be the best that it can be. I cannot alter the path of my disease; however, most likely you can make small changes that will enable you to enjoy the peace that I experience.
Even though I do not like my world, I am comfortable in it so long as I have calm and peace. You are integral part of making that happen. Together, we can enjoy life when this occurs. I want you to have just as much peace in your life as I do.
Please remember when you come into my world, there might be things that you do not like; but, I am thankful you are here. I still need you to come into my world; and, I am still Robert Bowles.
©2015 Robert Bowles
Robert Bowles, Jr.