Having an internist who has a good understanding of Lewy Body Disease (LBD) is truly a gift to me. Last week I visited him. He never rushes me and is patient if I am slow responding. Actually, he spent one hour with me. My blog today will cover some things that will or might be seen in LBD.
During the visit, we talked about the changes in focus and attention. Over the past 14 months, I have continued with gastrointestinal (GI) issues. These issues have mainly been fluctuations with constipation and diarrhea. I have seen a gastroenterologist for multiple visits and by physicians at Mayo Clinic in Minnesota during this time. No answers have been found. I was advised that I should see a physical therapist that specializes in pelvic floor. I have seen one that has a PhD in this area of expertise. Last September, I started seeing her. At my first visit, she told me that my problem was not pelvic floor. She suggested that it was likely scar tissue from the colon surgeries that I had in late 2013 and early 2014.
The process started of her stretching the scar tissue and continuing one layer at a time. There was no pain in it, but it did mean that we would drive every week to her office which is about 50 miles away from home. There have been ups and downs during this process. I will think that I am doing better only to be disappointed by regressing.
At my appointment with the internist this week, he reached the conclusion that it was likely autonomic dysfunction (automatic things that happen in the body). Having been a pharmacist, I know that I will likely continue dealing with this situation, with some days good, some not so good days and some days bad.
When I face these situations, I have a choice.....to accept or focus on it. For me, accepting my situation and keeping a positive attitude has been a huge part of my journey. Yes, I do get sad, frustrated and sometimes angry at the things that are difficult to deal with. However, I have found that my acceptance and having a positive attitude enables me to move ahead with less frustration. If I choose to harbor those feelings, I am only hurting myself and my family. I would continue to be angry, agitated and tough to live with.
I fully realize that I will likely reach a point when I will not longer have control of those feelings and emotions. However, until that time, I choose to stay positive and find ways to compensate for the changes in my life.
© Robert Bowles 2016
Robert Bowles, Jr.