"Football is like life - it requires perseverance, self-denial, hard work, sacrifice, dedication and respect for authority" by Vince Lombardi
I feel for me to successfully live with Lewy body dementia (LBD), I must have perseverance. It is the highest and lowest roller coaster that anyone could ever ride. The different faces that may appear from minute-to-minute, hour-to-hour or day-to-day is unpredictable. I must stay strong and not allow these events to destroy me.
"Look at Christ, my dear friend; His life was divine through and through, full of self-denial, and He did everything for mankind finding His satisfaction and His delight in the dissolution of His material being." by Makhail Bakunin. That says it all. If I want to be more like Christ, I must deny myself and help others. This allows me to not focus on my trials and tribulations.
"The price of success is hard work, dedication to the job at hand, and determination that whether we win or lose, we have applied the best of ourselves to the task at hand.? by Vince Lomabardi. I must work hard at living with dementia well, if I am going to have a good quality of life.
"I have nothing to offer but blood, toil, tears, and sweat." by Sir Winston Churchill. This says everything to me. With a diagnosis of dementia, I gave up many of my dreams for the latter years of my life. Not wanting to give up, I chose to find new dreams and new aspirations and climb the mountains to achieve them.
"What does it take to be a champion? Desire, dedication, determination, concentration and the will." by Patty Berg. All of these qualities help me as a attempt to be a champion in advocacy for the person living with dementia and the care partners that are in the trenches.
As person living with dementia, I must have respect for many people. Among those are....others with dementia, care partners and healthcare providers. Many times, I see people be disrespectful of those living with dementia. Sometimes, people will tell them that what they are saying cannot be true. For the person living with dementia, it is true. I feel care partners probably have a more difficult life than the person with dementia. For me, I can accept what I am dealing with. All to often, it appears to me that the care partner wants to fix the person with dementia and that will never happen. Healthcare providers and care partners, are doing the best they can with the limited research that has been funded in attempting to find ways to increase quality of life and yes, even possibly find a cure for dementia.
For now, I must stay focused on the things I am doing and time will tell the story.
©2015 Robert Bowles
Robert Bowles, Jr.