One year after my diagnosis of LBD, I began spending a lot of time in dementia advocacy. Everyday is a new experience.....with new people coming into my life that are living with dementia or being a care partner for someone living with dementia. Most days I see at least one miracle and sometimes three or four . I do not know the people who are contacting me, but they are becoming my friend. Many of them show signs of confusion, struggling and hurt....but they inspire me because of their desire to do the best they can whether living with dementia or being a care partner.
One day this week someone called me from Macon, Georgia. His wife was diagnosed with LBD four years ago. We talked for one hour with him talking about 75% of time.....a lot of questions and what to do? The answers are not routinely provided to a person being diagnosed with dementia or their care partners. Judy and I plan to have lunch with he and his wife next week while we are in Macon for a Doctor's appointment.
That afternoon a man called me from Ocala, Florida. He was diagnosed with LBD two years ago. We talked for about 30 minutes with him sharing the frustrations of the hallucinations, nightmares, terrors and dream acting.
Today, I met someone who is going to help me encourage another ethnic group to start coming to our memory cafe. I have been working on this for a year and all of a sudden I made a connection that will likely bring these individuals into our cafe.
Also a lady befriened me on Facebook today from Athens, Georgia. Either tonight or tomorrow, she and I will use ZOOM so that we can virtually meet for her to share her concerns about having three family members with dementia living four hours away from her. Another example of care partners having difficulty finding resources.
These type situations are happening almost every day. Thank you God for putting people into my life as we go down our journey with dementia. This charges the battery in my life and leads me to continue helping others.
Fight like a Tiger - Be LBD Strong
©June 23, 2016 Robert Bowles
Robert Bowles, Jr.