Let's consider the impact of Parkinsonism on my journey. I chose to share this symptom today because it is the one that has troubled me the most for the past month (other than the GI issues that have been going on for 14 months).
We know there are two types of Lewy Body Disease (LBD)..... (1) Dementia with Lewy Bodies (DLB) (memory issues occur within the first year of motor symptoms and (2) Parkinson's Disease Dementia (PDD) (memory issues occur more than a year from the start of motor symptoms. Parkinsonism is a group of nervous disorders similar to Parkinson's Disease. Some of these are rigidity, tremor and impaired motor control.
In my journey these symptoms have shown a wide variance in the severity of them. At the time of diagnosis in June 2012, I displayed hand tremors (usually one hand would be more significant than the other), stooped posture, shuffled gait, rigidity and a low voice which is often seen in Parkinson's.
These symptoms have been from mild to very problematic. For me, it is unpredictable as the path they will take. Earlier this year, I went into the grocery store with my wife. I walked into the store with a normal gait. As soon as I put both hands on the cart, neither foot would come off the floor. This continued the entire time in the store and into the parking lot. After sliding my feet into the house, I stretched out in the recliner. Several hours later, I awoke and was walking normal again.
Over the past month, my Parkinsonism issues have increased. I have especially noticed my hand tremors have been much worse. This morning, I walked into my office so that I could begin writing my blog for today. As I put my fingers on the keyboard, they would not rest on the keys. They were bouncing left to right and up and down.
At this point, I had two choices. (1) I could continue to attempt to write the blog and likely become very agitated and frustrated or (2) I could return to the den and relax.....not really thinking about anything. When faced with situations like this, I always choose to walk away. I know that if I don't walk away, I will likely become something that I do not want to be.
I have found by removing myself from the situation, I can maintain my inner peace that is so important to me. Adapting and finding alternatives is important for someone with dementia. I may not be able to do things the same way, but I can do it differently and accomplish the same results. Always stay away from beating yourself up.
Be LBD Strong!!
© 2016 Robert Bowles
Robert Bowles, Jr.