I have not posted in several days because of increased symptoms occuring that may or may not be directly related to Lewy Body Disease (LBD). I think that I have, now, been able to connect the dots.
I feel that I am just now having a better understanding of why I have been told to see an autonomic specialist. Most likely, I may be having symptoms that are different than what might be the understanding of what LBD actually represents. I have decided that many of my symptoms most likely are integrating with my DLB (dementia with Lewy bodies).
I have noticed that my neurologist refers to me as having DLB instead of Lewy body dementia. As mentioned above LBD represents an umbrella and stands for Lewy body disease. There are two types of LBD, dementia with Lewy bodies and Parkinson's disease dementia. Most likely physicians refer to most people as having LBD without differentiating between the two. DLB is a multi-symptom disease as my neurologist as mentioned. In DLB, the memory problems occur within the first year of the motor problems. In PDD, the memory problems occur more than a year out from having the motor symptoms.
He has been talking about the likelihood that I have multiple system atrophy (MSA) and and Dysautonomia for over two years. According to Mayo Clinic, MSA is a rare neurological disorder that impairs your body's involuntary (autonomic) functions, including blood pressure, heart rate, bladder function and digestion. MSA is a degenerative disease that develops in adulthood, usually in the 50's or 60's. Autonomic dysfunction, including orthostatic hypotension is common in conditions like aging, diabetes and Parkinson's disease --- and there is accumulating evidence that it may even be associated with a worse prognosis in such conditions.
Now, I feel that I have connected the dots as to why my neurologist wants me to see an autonomic physician and there are only a few in the United States. Until I am able to see the autonomic physician that my neurologist wants me to see at Mayo Rochester on June 2nd, I can only trust God that He will take care of me until that time. With ALL diligence, I will remain in frequent contact with Mayo before my appointment. By doing this, I can only hope that I will be able to receive an appointment sooner, if a cancellation should occur.
God's word tells me in Psalm 27:1; "The Lord is my light and my salvation---whom shall I fear? The Lord is the stronghold of my life---of whom shall I be afraid?" Because of this verse of scripture, I have no fear, and I have total peace.
©2015 Robert Bowles
Robert Bowles, Jr.